A new Story

Created by Christine 11 years ago
Samantha was a student nurse. She was 7 months pregnant with her first baby when she died of SUDEP aged 25. Samantha was born on a cold, snowy morning in February 1979. From the moment she was born she turned the light on in every life that she ever touched. She was her mother’s pride and joy and Christine was ecstatic about being a grandma. Samantha had met Patrick and they were soul mates. The baby was the icing on the cake. She was in her final year at university. They were to be married in the spring and everything was wonderful. The day before she died, Samantha spent the afternoon with her mother. Her brother, Scott decided to come home from university for the weekend and he joined them a little later in the afternoon. They had a brilliant afternoon laughing and joking. The baby was digging into her ribs and kicking like crazy. Christine was convinced it was a little boy. Samantha’s younger sister, Kerry, joined them when she finished school and all three children were together with their mother for a precious couple of hours. At about 5.30pm she left with her usual; "See you later mum. Love you." Christine shouted; "I love you too," and off she went. That was the last time her mother saw her alive. Later that night, she went with the nurses from her course for their Christmas party. She had a wonderful time, singing at the karaoke and spending time with her friends. She was home for midnight and text her friend to say that she had arrived home safely. She then rang Patrick to say that she loved him and couldn't wait for him to get home the next day. She then went to sleep and never woke up. The inquest identified the cause as SUDEP, something the family had never heard about. They said the baby was a boy so the family were able to name him Regan. Samantha had already chosen his name. Christine says: “It is only since finding the website of Epilepsy Bereaved have I been able to find answers to some of my questions. Only one week prior to Samantha's death she received a letter from her neurologist telling her that she was a very low-risk patient and that she didn't need to take the anti-epileptic medication. She had experienced seizures in her sleep from the age of 16, only a couple of times a year. She was never accurately diagnosed and wasn't aware of the risks. I have raised thousands of pounds for Epilepsy Bereaved but predominantly it is to raise awareness of SUDEP. I can't bring Samantha and Regan back but I can try to prevent anyone else from going through the hell that we now call life. I still struggle to get through every day. I long to be with her, but know that I must wait until it is my turn. I also have a wonderful husband and two fantastic children so I do still have a reason to live. I am sure that other parents can understand the pain that never leaves you, the weight that you carry around in your heart. It has helped me a little, to share her story “